Coping with a Child’s Congenital Heart Defect
Kurtis Kehler’s son underwent open-heart surgery at just 10 days old. It has put tremendous emotional and financial strain on their family.
Name a job you can actually do when your baby is in the hospital getting open-heart surgery. It was hard for us to even sleep, let alone eat and cope.
The Congenital Heart Information Network recommends the following books for parents to help them understand what it’s like to have a child with congenital heart disease.
- The Parent’s Guide to Children’s Congenital Heart Defects: What They Are, How to Treat Them, How to Cope With Them by Gerri Freid Kramer and Shari Maurer
- Growing up strong: What every parent should know about self-concept in children with long-term illnesses by Mary Brukett
- Your Child in the Hospital (Patient-Centered Guides) by Nancy Keene and Rachel Prentice
- Building the Healing Partnership: Parents, Professionals, & Children With Chronic Illnesses and Disabilities by Patricia Taner Leff and Elaine H. Walizer
I hope you’ll be able to find these at your local library or bookstore. Are there any other books that have helped you and your loved ones cope with serious heart conditions?
edmontonsun.com, February 19, 2007
Tags: heart, heart disease, diseases, illness, health, books, congenital heart defect
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POSTED IN: Hearty Tips, People With Heart Disease
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